I saw a video today that made me think yet again of the
power of just wanting to make a difference. The video was about an organization
in the US called the ‘I can House’. It was a place where autistic children and
youth could go to to improve their social skills and hone their abilities on
aspects that they show promise in. I was amazed at the children’s
articulateness for here in our centre SK, we see only children let down by the
system so badly that we have to rebuild painfully brick by brick. Ours is a
journey that seems unbelievably long and hard but then it is also rewarding.
In the 'I can House' video, I saw unusual creativity and a
sense of joy that each child had because they had a place where they truly
belonged. They worked in groups when they wished to and collaborated on art
projects. They sat individually with a volunteer or mentor when they were
having bad days. In autism, one learns to take each day at a time anyway and
any progress chart is bound to have rather extreme ups and downs. It is the
same vision I have for SK – not only do I want our centre to equip the children
on the spectrum with viable skills, I also want them to have fun and to
discover the joy of being in touch with themselves. I want them to hang out and
laugh and do great work – the kind of work that will make the world sit up and
take notice, the kind of work that will remove once and for all, the cloak of
invisibility that seems to shroud my children.
In the same video, a young volunteer spoke a few simple
words – he said that in our short human lives, our only duty must be to make
the world a better place – nothing else should matter. I look around at people
near my home and see how many make issues of problems that to me seem eminently
solvable. Many are to do with ego or false pride. Many are to do with an
attitude that is steeped in ignorance. Yet others are to do with the belief
that they are above any sort of ill-luck because they are better than anyone
else. The observations make me smile. How petty seem the meaningless tussles of
shattered delusions and selfish manipulations? How on earth does any of it
matter in the long run? There are also genuine problems that people struggle
with and try and live life courageously – that always fills me with admiration.
That young volunteer with the passionate eyes had it right – working to make
the world a better place as far as we can is the best thing anyone can do.
Last evening a young teenaged friend came home to discuss
how he and his friend could motivate his school to be involved in our centre.
This is a normally shy and quiet young man but I could see how the past few
weeks of learning about autism and seeing our kids at work had lit a spark in
him deep inside. He wanted to contribute and make a difference. We spoke for an
hour and I told him that anything we worked on had to start with awareness. If
you are aware of the nature of a problem, you are better equipped to handle it –
you react with deliberation and not out of fear. He was surprised to know that
even where we lived I had experienced intense lashes from small minds
because my child was on the spectrum. I told him that unlike kids, certain adults
are capable of a great deal of prejudice and so we should only target youngsters
when we try to spread the word and build a community. In him and his friends, I
see true promise.
I hope this first step works. I hope that SK’s objective of
making a difference and of celebrating unlikely strengths is satisfied one day
not too far into the future.